关于数据共享平台的议程制定文件:euCanSHare研讨会
Thijs Devriendt1, Clemens Ammann2, Folkert W Asselbergs3,4,5,6
1Centre for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
Open research Europe
|August 30, 2023
概括
开发数据共享平台面临着政策挑战. 解决可持续性,资源和数据访问等问题对于最佳平台功能和推进队列数据共享至关重要.
科学领域:
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
- 生物信息学是一种生物信息学.
背景情况:
- 队列数据共享在各种存储和访问系统中分散.
- 现有的数据共享平台需要政策解决方案来克服未解决的挑战.
研究的目的:
- 在队列数据共享平台中识别和讨论政策挑战.
- 为优化数据共享平台制定未来的研究议程.
- 解决有关平台多样性,可持续性和资源分配的担忧.
主要方法:
- 组织了euCanShare工作坊.
- 促进了关于政策挑战的讨论.
- 概述了未来研究和解决方案的关键领域.
主要成果:
- 确定了包括平台多样性和长期可持续性在内的问题.
- 突出了资源可用性和对医疗数据的商业访问问题.
- 讨论了需要强大的信用/认可机制和数据访问委员会.
结论:
- 需要解决方案来确保数据共享平台的最佳运行.
- 解决政策挑战对于有效的队列数据共享至关重要.
- 未来的研究应侧重于可持续性,资源管理和公平的数据获取.
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