收集,分享和使用健康信息的原则:美国心脏协会的政策声明
Circulation
|August 30, 2023
概括
通过电子健康记录和分析来推动广泛的健康数据共享,加速研究和改善患者护理. 政策原则对于不同社区的公平,负责任的数据使用至关重要.
科学领域:
- 医疗信息学
- 公共卫生政策
- 数据科学
背景情况:
- 电子健康记录 (EHR) 和数据分析的进步促进了健康信息的共享和协调.
- 对健康和健康代理数据的分析加快了研究发现,并提高了患者的护理.
研究的目的:
- 概述美国心脏协会关于健康数据收集,共享和使用的政策原则.
- 解决有关数据敏感性,被排除在外的社区的公平性以及管理健康数据的法律框架的问题.
主要方法:
- 对健康数据共享的公平性和法律考虑的审查.
- 美国心脏协会的公共政策参与的指导原则.
- 包括政策应用的例子.
主要成果:
- 确定了不同利益相关方 (收集者,资助者,研究人员,患者,政策制定者,行业和监管机构) 需要共享数据的原则.
- 概述了与负责任的健康数据管理相关的关键公平性和法律背景.
- 建议原则指导政策制定,以尊重,公平和有益的健康信息重复使用.
结论:
- 基于坚实的原则进行广泛的数据共享对于推进健康研究和患者护理至关重要.
- 政策必须确保卫生数据的使用是尊重,公平,有利于多样化的群体.
- 美国心脏协会将使用这些原则来为其关于健康数据的公共政策工作提供信息.
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