开发和评估一个亲属保持规模,并将其应用于识别非洲裔美国人家庭网络中的中心影响者
Caitlin G Allen1,2, Colleen M McBride3, Cam Escoffery3
1Medical University of South Carolina, Charleston, SC, USA. allencat@musc.edu.
Journal of community genetics
|August 30, 2023
概括
这项研究开发并评估了第一个定量亲属计量表,以评估家庭关于遗传疾病风险的沟通. 研究结果表明,保持亲属关系可以被视为一种可修改的行为,而不仅仅是角色,有助于健康沟通研究.
科学领域:
- 家庭系统理论 家庭系统理论
- 遗传咨询 遗传咨询
- 卫生沟通健康沟通
背景情况:
- 关于遗传性疾病风险的家庭沟通至关重要.
- 保持亲属关系,一个家庭系统的构造,可以促进这种沟通,但仍未得到充分研究.
- 作为一个角色,现有的保持亲属关系的概念化缺乏对其行为方面的经验测试.
研究的目的:
- 扩大亲属关怀的概念化,区分角色和行为视角.
- 开发和评估一个量化尺度测量亲属养护.
- 为了测试亲属在家庭沟通中对遗传疾病风险的作用.
主要方法:
- 通过概念分析,内容有效性和规模开发开发了一种亲属维护规模.
- 使用全国样本 (n=312) 进行规模开发和探索性因子分析 (n=52) 进行评估.
- 使用比较性适合指数 (CFI),调整性适合指数 (AFGI),近似的根平均平方误差 (RMSEA) 和标准化根平均平方残余 (SMRM) 评估规模适合.
主要成果:
- 开发了第一个定量亲属计量表 (9项和15项版本).
- 这两种尺度都显示出很好的模型匹配 (例如,9项:CFI=0.97,RMSEA=0.09;15项:CFI=0.97,RMSEA=0.06).
- 结果支持将亲属关怀概念化为一组可修改的行为,与固定角色不同.
结论:
- 开发的亲属保养量表允许对其对信息共享和健康决策的影响进行严格的研究.
- 保持亲属关系可以被视为一种行为,为有针对性的干预和培训开辟了道路.
- 该尺度可以在各种理论模型中运行亲属养护,并评估家庭亲属养护密度的变化.
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