长期患者报告的国际收养儿童口唇裂的结果
Lauren K Salinero1, Vinayak S Ahluwalia1, Carlos E Barrero1
1Division of Plastic, Reconstructive, and Oral Surgery, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
概括
与未被收养的同龄人相比,国际收养的唇裂患者对面部外观和言语的满意度较低. 然而,心理社会结果是相似的,患者报告的结果 (PROs) 与客观语音评估相关.
科学领域:
- 面外科手术 面外科手术
- 患者报告的结果.
- 青少年健康 青少年健康
背景情况:
- 唇裂 (CLP) 影响外观和功能.
- 国际采用为CLP患者带来了独特的挑战.
- 了解患者报告的结果 (PRO) 对综合护理至关重要.
研究的目的:
- 为了比较国际采用的CLP患者中的PROs与非采用的同龄人.
- 评估对面部表情,言语和心理社会功能的满意度.
- 为了将PRO与客观的临床评估相关联.
主要方法:
- 在第三级护理医院进行横截面研究.
- 包括8岁以上的CLP患者参加常规裂团队评估.
- 使用CLEFT-Q进行PRO评估和匹兹堡加权语音分数进行客观评估.
主要成果:
- 收养的患者报告说,他们对面部外观和语言功能的满意度较低.
- 客观的语音评估显示,收养患者的结果更差.
- 两组之间在心理社会功能,情绪,焦虑或行为问题上没有发现显著差异.
结论:
- 国际收养的CLP患者对外观和言语的满意度略低.
- PROs与客观的语音评估保持一致.
- 与未被收养的同龄人相比,收养的CLP患者的心理社会功能没有负面影响.
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