绘制二十年的儿科唐氏综合征研究文献的地图
Caoimhe McKenna1,2,3, Anne Schilder4, Rachel Xue Ning Lee5
1UCL Great Ormond Street Institute of Child Health.
The Ulster medical journal
|August 31, 2023
概括
对唐氏综合征 (DS) 儿童的研究表明,在2014年之后,这种情况有所下降,但仅限于对尿生殖系统健康和儿童保护等关键领域的关注. 需要进一步调查,以解决儿科唐氏综合征研究中的健康不平等问题.
科学领域:
- 儿科健康研究 儿科健康研究
- 唐氏综合征研究 唐氏综合征研究
- 图书统计分析 图书统计分析
背景情况:
- 尽管取得了进展,但患有唐氏综合征 (DS) 的儿童面临着重大的健康负担和不平等.
- 有针对性的研究对于解决儿科DS护理中最大的需求至关重要.
- 了解研究差距可以指导未来对唐氏综合征的学术研究.
研究的目的:
- 系统地审查和分类二十年的儿科唐氏综合征文献.
- 为了确定出版量,原产国和研究方法的趋势.
- 确定儿童唐氏综合征的关键健康主题和研究缺口.
主要方法:
- 通过认识论方法,分析了2000年至2020年期间的5,800篇儿科DS出版物.
- 出版物按国家,方法,初级卫生主题和子主题分类.
- 数据分析确定了研究重点和研究设计的趋势.
主要成果:
- 出版物数量增加到2014年,然后下降,大多数研究来自西方国家.
- 横截面研究占主导地位 (33.3%),干预研究 (5.6%) 和定性研究 (2.7%) 不太常见.
- 主要研究领域包括发育和认知 (13.1%),神经学 (9.9%) 和瘤学 (9.8%),在生殖尿路健康,生长,死亡率和儿童保护方面显著不足.
结论:
- 儿童唐氏综合征存在显著的研究缺口,特别是在研究不足的卫生领域.
- 增加的学术注意力是合理的,对于主题,如生殖尿路健康,死亡率和儿童保护在DS.
- 解决这些研究缺陷对于改善唐氏综合征儿童健康平等至关重要.
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