父母如何在早期干预中框架他们的参与体验? 一个有基础的理论研究研究
Phillip Antony Harniess1,2,3, Anna Purna Basu4,5, Jeff Bezemer1
1Institute of Education, UCL, London, UK.
Disability and rehabilitation
|August 31, 2023
概括
父母参与患有脑的婴儿早期干预的过程随着生命中的关键事件而演变. 了解这些转变有助于治疗师支持家庭,并改善婴儿的结果.
科学领域:
- 儿科 儿科 儿科
- 发展心理学 发展心理学
- 康复疗法康复疗法康复疗法
背景情况:
- 父母和治疗师的参与对于患有脑 (CP) 的婴儿的早期干预 (EI) 至关重要.
- 有效的合作伙伴关系提高了CP儿童的治疗结果.
- 了解父母在EI中的经验对于优化支持至关重要.
研究的目的:
- 探索父母对随着时间的推移在早期干预服务中的参与经验的看法.
- 了解父母参与如何在婴儿物理治疗和脑职业治疗的背景下演变.
主要方法:
- 使用了有根据的理论方法.
- 来自不同背景的20名家长参加了22次采访,其中一些采访是纵向进行的.
- 采访的重点是英国国家卫生服务 (NHS) 社区EI服务中的参与经验.
主要成果:
- 父母的参与观点根据新生儿创伤,CP诊断和孩子对治疗的反应等关键情况而发生变化.
- 被打乱的过渡到父母影响父母对他们的EI参与的理解.
- 不确定性,追求和转变的框架标志着父母在EI中的不断变化的参与模式.
结论:
- 父母对EI的参与是动态的,并受到重大生活事件的影响.
- 通过了解这些不断变化的参与模式,治疗师可以更好地支持父母的过渡和婴儿的结果.
- 这项研究为加强以家庭为中心的护理在脑早期干预中的治疗策略提供了信息.
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