开发一个互动工具,以支持共享决策在类风湿性关节炎:治疗属性偏好
Jeffrey R Curtis1, Kerri Ford2, Stefano Fiore3
1University of Alabama at Birmingham, Birmingham, Alabama.
Arthritis care & research
|August 31, 2023
概括
一项调查确定了患者对类风湿性关节炎 (RA) 治疗的偏好,以开发共享决策 (SDM) 工具. 服用途径,剂量频率和严重的副作用是患者关键考虑因素.
科学领域:
- 类风湿病学 类风湿病学
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 共享决策 (SDM) 在治疗类风湿性关节炎 (RA) 中至关重要.
- 开发有效的SDM工具需要了解患者对治疗属性的优先考虑.
- 目前的工具可能无法完全捕捉RA患者的细微偏好.
研究的目的:
- 确定关键的治疗属性,对RA患者来说很重要.
- 为 RA 管理开发一个交互式 SDM 工具提供信息.
- 评估患者和风湿病学家对SDM工具设计的看法.
主要方法:
- 这是一项两阶段的调查,包括定性访谈和定量评估.
- 与10名RA患者和10名风湿病学家进行的定性访谈为调查设计提供了信息.
- 定量调查 (n=944) 使用适应性联合炼来对治疗属性进行排名.
主要成果:
- 服用途径和剂量频率 (38%) 和严重的副作用 (33%) 是RA患者最关键的治疗属性.
- 开发的SDM工具概念通常受到患者和风湿病学家的好评.
- 在反映属性的重要性方面,工具的稳定性估计为72%.
结论:
- 可以系统地确定患者对治疗属性的偏好.
- 结合这些偏好的交互式SDM工具可以加强RA的共享决策.
- 这些发现支持开发可靠和以患者为中心的RASDM工具.
相关概念视频
Rheumatic Heart Disease III: Medical Management
12
Rheumatic heart disease (RHD) management can be divided into two main strategies: prevention and long-term management.Primary PreventionPrimary prevention focuses on timely diagnosis and management of group A streptococcal pharyngitis to prevent acute rheumatic fever. The most widely used antibiotic for treating this condition is intramuscular benzathine penicillin G.Acute Rheumatic Fever TreatmentThe primary treatment goal for a patient diagnosed with acute rheumatic fever is to suppress the...
12
Rheumatic Heart Disease IV: Nursing Management
18
AssessmentA comprehensive assessment is essential in managing a patient with rheumatic heart disease (RHD). Begin with obtaining a detailed medical history, including recent streptococcal infections, a history of rheumatic fever, or previously diagnosed rheumatic heart disease. Assess the patient for symptoms such as fever, chest pain, widespread joint pain (arthralgia), tachycardia, pericardial friction rub, muffled heart sounds, heart murmurs, peripheral edema, subcutaneous nodules, and...
18
Rheumatic Heart Disease II: Clinical Manifestations and Diagnostic Studies
38
The key clinical manifestations of Rheumatic heart disease (RHD) include several distinct cardiac symptoms.Carditis, a hallmark of acute rheumatic fever, involves inflammation of the heart's endocardium, myocardium, and pericardium. Chronic RHD often results from recurrent episodes of carditis. Its symptoms include the following:Murmurs are caused by valvular damage, especially to the mitral and aortic valves. Mitral stenosis or regurgitation is common, with characteristic heart murmurs...
38
Rheumatic Heart Disease I: Introduction
16
Rheumatic heart disease or RHD is a chronic condition that results from rheumatic fever, causing permanent damage to the heart valves.Etiology and Risk FactorsIt primarily arises from rheumatic fever, an inflammatory disease that can develop after untreated or inadequately treated group A streptococcal (GAS) pharyngitis. Streptococcus spreads through direct contact with oral or respiratory secretions. While the bacteria are the causative agents, factors like malnutrition, overcrowding, poor...
16
Peripheral Artery Disease III: Interprofessional Care
11
Peripheral Artery Disease (PAD) is characterized by narrowed arteries that diminish blood flow to the extremities. Effective management of PAD requires an interprofessional approach involving various healthcare professionals. The critical aspects of interprofessional care for PAD patients focus on risk factor modification, drug therapy, exercise therapy, nutrition therapy, critical limb ischemia care, and interventional radiology and surgical procedures.The primary treatment goal for PAD...
11
Drugs for Treatment of Crohn's Disease in IBD Using Immunomodulatory Agents
195
Crohn's disease is an inflammatory bowel disorder marked by chronic inflammation of the GI tract. Various treatment strategies for Crohn's disease are employed, such as immunomodulatory agents, glucocorticoids, and biologics or anti-TNF therapy. Azathioprine (Imuran), a commonly used immunomodulatory drug for Crohn's disease, is converted in the body to mercaptopurine, which inhibits purine biosynthesis and cell proliferation. Both are utilized in severe cases of Inflammatory Bowel...
195


