通过使用德尔菲方法在上肢淋巴 edem 的核心数据集上达成共识:创建临床支持系统的基本步骤
Robyn Sierla1,2, Elizabeth Dylke1, Simon Poon1
1The University of Sydney, Australia.
概括
这项研究建立了上肢淋巴 edem 的核心数据集,标准化了临床医生如何监测和报告胀. 这旨在提高数据的一致性,并支持数字健康系统,以改善患者护理.
科学领域:
- 医学研究 医学研究
- 临床数据标准化的标准化.
- 淋巴 edem 的管理 淋巴 edem 的管理.
背景情况:
- 淋巴 edem 包括局部胀由于淋巴系统的妥协,导致组织变化.
- 目前对淋巴的评估和报告方法缺乏标准化.
- 在评估领域,结果,测量协议和报告描述符中存在异质性.
研究的目的:
- 为了达成对上肢淋巴瘤核心数据集的基本数据项目的共识.
- 为了促进上肢淋巴 edem 的监测和报告的数字化.
- 建立一个临床支持系统的基础.
主要方法:
- 一项经过修改的Delphi研究,涉及70名专家,在两轮在线研究中进行.
- 专家们从先前的研究中改进了一份常见结果和描述者的清单.
- 参与者对项目的重要性进行了评分,并确定了缺失的元素,然后对新项目和数据显示偏好进行了评分.
主要成果:
- 证实了上肢淋巴 edem 的核心数据集.
- 两肢间的差异 (百分比) 和四肢体积在纵向图表中是首选的.
- 观察和触摸变化的描述因子从42减少到20个.
结论:
- 开发的数据集为上肢淋巴 edem 的评估提供了一个标准化的基础.
- 这种标准化对于开发临床支持系统至关重要.
- 数字化监测和报告将提高数据的一致性和质量.
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