对痴呆症患者及其护理人员的预先护理规划网站的评估:混合方法研究协议
Charlèss Dupont1,2, Fanny Monnet1,2, Lara Pivodic1,2
1VUB-UGhent End-of-life Care Research Group, Vrije Universiteit Brussel, Brussel, Belgium.
Digital health
|September 1, 2023
概括
本研究评估了一个新的网站,旨在帮助痴呆症患者及其照顾者提前进行护理计划 (ACP). 该创新方法使用混合方法来评估可用性和影响,旨在改善对这一弱势群体的支持.
科学领域:
- 老年学是一门学科.
- 医疗信息学 医疗信息学
- 数字健康数字健康
背景情况:
- 基于网络的工具显示出支持痴呆症患者及其家庭护理人员的预先护理计划 (ACP) 的希望.
- 采用以用户为中心的设计方法,为此群体开发专门的ACP网站.
- 本议定书概述了开发的阿克苏网站的评估方法.
研究的目的:
- 评估基于Web的工具的可用性,可接受性和可行性,旨在支持痴呆症患者及其家庭护理人员的预先护理计划 (ACP).
- 评估ACP网站对用户准备,知识,态度,感知障碍,自我效能和与ACP相关的技能的影响.
- 探索痴呆症患者及其家庭照顾者的用户体验,他们与基于网络的非洲国家和地区支持工具互动.
主要方法:
- 将使用一个融合的并行混合方法前后测试设计,并进行持续的后续跟踪.
- 30个轻度至中度痴呆症患者和他们的家庭照顾者将使用该网站8周.
- 数据收集将涉及采访,调查和持续数据记录的组合,以捕捉使用,可用性和用户体验.
主要成果:
- 预计招聘和数据收集将在2022年底到2023年之间进行.
- 该研究预测,招募患有痴呆症的参与者及其家属面临的挑战,需要制定强有力的招聘策略.
- 关于网站使用情况,可用性,可接受性,可行性以及对非洲和非洲相关成果的影响的详细发现将在研究完成后报告.
结论:
- 这项研究是首次评估一款专门用于支持痴呆症患者及其家属的预先护理计划 (ACP) 的基于网络的工具.
- 综合采访,调查和数据记录的混合方法方法,为数字支持工具的现实应用提供了全面的见解.
- 预计这些发现将指导未来开发和评估基于网络的干预措施,用于痴呆症护理和预先护理规划.
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