家长在社区医疗保健系统中对儿科息护理的经验:一种定性研究
Stine Andreassen Rud1, Eirin Skagestad1, May Aasebø Hauken2
1Center for Crisis Psychology, Faculty of Psychology, University of Bergen, Bergen, Norway.
Palliative care and social practice
|September 1, 2023
概括
家长们发现社区儿科息护理 (PPC) 是有限而脆弱的,往往缺乏协调和灵活性. 改善PPC需要更好地整合医院和社区服务,早期参与,并以家庭为中心的方法,为儿童与生命限制疾病.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 社区医疗保健 社区医疗保健
- 以家庭为中心的护理
背景情况:
- 儿童的生命限制性疾病很少见,但对家庭造成重大负担.
- 儿科息治疗 (PPC) 旨在提高患病儿童及其家人的生活质量.
- 大多数家庭更喜欢家庭护理,但社区的PPC知识,特别是从父母的角度来看,是有限的.
研究的目的:
- 探索家长对社区儿童息护理 (PPC) 的经验.
主要方法:
- 定性解释性描述性研究.
- 半结构面试与11名父母的孩子与生命限制疾病后的悲伤.
- 系统的文本缩写用于数据分析,遵守QOREQ指南.
主要成果:
- 父母描述了与医院和社区服务的互动,经常感觉到未得到满足的需求.
- 经验包括儿童需求日益复杂和生命末期阶段.
- 父母渴望一个正常的生活,尽管他们的特殊情况.
结论:
- 社区PPC被认为是有限的,脆弱的,缺乏灵活性和协调.
- 建议的改进包括早期社区医疗整合,加强护理协调和更强的家庭重点.
- 优化PPC需要更好的可访问性,灵活性和协调的社区服务.
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