社区之间的桥梁建设:想象未来的生物医学自闭症研究
Síofra Heraty1, Alexandra Lautarescu2, David Belton3
1Department of Psychological Sciences, Birkbeck, University of London, London WC1E 7HX, UK.
Cell
|September 1, 2023
概括
需要改变研究文化的范式, 以减少自闭症患者与生物医学研究人员之间的紧张关系. 参与性研究可以促进一种支持神经多样性的方法,超越基于缺陷的自闭症观点.
科学领域:
- 神经科学
- 医学研究
- 关于残疾人的研究
背景情况:
- 自闭症患者与生物医学研究界之间存在紧张关系.
- 目前的研究模式可能会延续基于缺陷的自闭症观点.
研究的目的:
- 倡导研究文化的转变.
- 提出参与式研究作为一种支持神经多样性的生物医学研究模式.
主要方法:
- 涉及自闭症和非自闭症科学家和利益相关者的协作方法.
- 研究范式的概念分析和自闭症概念化.
主要成果:
- 参与式研究可以挑战基于缺口的模式.
- 能够实现对神经多样性的生物医学研究的共同愿景.
结论:
- 为了提高研究的包容性,需要进行文化转变.
- 接受参与式方法可以为自闭症患者创造一个更公平的研究环境.
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