没有我们就没有我们:让艾滋病毒感染者青年参与虚拟咨询委员会
Autumn B Chidester1, Catherine J Johnson2, Hueylie Lin1
1Division of Infectious Diseases, Department of Medicine, University of Texas Health Science Center at San Antonio, San Antonio, Texas.
概括
为艾滋病毒感染者青年 (YLWH) 开发了一个虚拟青年咨询委员会 (YAB),加强参与移动健康应用程序的适应. 这种创新模式将安全,灵活性和隐私作为青少年参与的优先事项.
科学领域:
- 青少年健康 青少年健康
- 公共卫生信息学 公共卫生信息学
- 数字健康数字健康
背景情况:
- 传统的社区咨询委员会 (CAB) 需要针对特定人群进行调整.
- 艾滋病毒感染者青年 (YLWH) 在参与和参与方面面临着独特的挑战.
- 移动健康 (mHealth) 应用程序为艾滋病毒治疗提供了潜力,但需要以用户为中心的设计.
研究的目的:
- 为YLWH适应传统的CAB模型.
- 创建一个虚拟,异步和匿名的青年咨询委员会 (YAB).
- 促进YLWH参与适应艾滋病毒护理mHealth应用程序.
主要方法:
- 通过YAB成员对移动健康应用程序进行形成性评估,调整和试点实施.
- 通过调查和采访收集反.
- 参与的内容分析和YAB的调整.
主要成果:
- YAB从面对面的会议演变为虚拟,异步和匿名的格式.
- 五项调查提供了与沟通,应用程序功能,隐私和支持小组相关的调整信息.
- 适应的关键驱动因素包括COVID-19风险降低,异步和匿名性.
结论:
- 适应的虚拟YAB模型成功地使YLWH参与了mHealth应用程序开发.
- 该模型的灵活性和匿名性对于年轻人的参与至关重要.
- 这种适应性方法可以应用于其他以年轻人为中心的健康倡议.
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