遗传咨询学生的残疾人培训:倡导者的观点
Dena Winchester1, Lisa Karger1, David Wasserman2,3
1Department of Genetics and Genomic Sciences, Icahn School of Medicine at Mount Sinai, New York City, New York, USA.
Journal of genetic counseling
|September 5, 2023
概括
障碍者倡导者渴望为遗传咨询培训做出贡献. 他们建议在课堂上进行讲座和影子体验,以提高学生对残疾的理解,并提高患者护理.
科学领域:
- 医学遗传学 医学遗传学
- 关于残疾人的研究.
- 生物伦理学生物伦理学
背景情况:
- 遗传学和残疾社区之间的关系在历史上是复杂的,受到优生学的影响.
- 残疾学者倡导将残疾教育纳入医疗保健培训,以获得最佳的患者护理.
- 缺乏关于残疾倡导者对遗传咨询中残疾培训的观点的研究.
研究的目的:
- 探索残疾倡导者关于在遗传咨询培训计划中实施残疾教育的建议.
- 了解倡导者的观点,增加学生暴露于残疾的好处.
- 为遗传咨询学生确定首选的体验式学习机会.
主要方法:
- 一项探索性研究,涉及与13名残疾倡导者的半结构面试.
- 参与者曾经有过残疾的经历,并接受过遗传咨询.
- 采访重点是关于残疾教育的建议和感知到的好处.
主要成果:
- 倡导者对参与遗传咨询教育表达了强烈兴趣.
- 关键建议包括在课堂上讲话的倡导者和跟随残疾人的学生.
- 识别的障碍包括可访问性问题;好处包括增强学生的知识和对残疾资源的理解.
结论:
- 障碍者倡导者愿意参与遗传咨询教育,并对体验式学习提出具体建议.
- 整合残疾教育可以在遗传咨询学生中培养对残疾生活的更全面的理解.
- 改进的培训可能会为新诊断的残疾人提供增强的遗传咨询服务.
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