关于传统治疗师对表皮溶解牛皮的看法和管理的定性研究
Antoinette V Chateau1,2, Nceba Gqaleni3,4, Colleen Aldous5
1Department of Dermatology, Grey's Hospital, Pietermaritzburg, South Africa.
Health SA = SA Gesondheid
|September 6, 2023
概括
这项研究探讨了传统卫生从业人员 (THPs) 对南非表皮溶解牛皮细胞 (EB) 的看法. 了解他们的信仰是改善EB患者护理和促进传统和全方位医疗保健之间的合作的关键.
科学领域:
- 皮肤病学 皮肤病学
- 公共卫生 公共卫生
- 医学人类学 医学人类学
背景情况:
- 牛皮表皮溶解 (EB) 是一种罕见的,具有严重并发症的不可治愈的基因皮肤病,南非对其流行和治疗的数据有限.
- 大多数非洲患者在寻求传统医疗护理之前先咨询传统医疗从业者 (THP),强调他们在医疗保健获取方面的重要作用.
研究的目的:
- 调查THPs关于Epidermolysis Bullosa (EB) 患者及其家属的信念系统,经验,感知和管理策略.
- 了解在传统治疗实践中影响EB患者护理的社会文化背景.
- 通过与THP合作,确定改善EB患者医疗保健的机会.
主要方法:
- 一项定性,两站点的研究,采用了对KwaZulu-Natal的10名传统卫生从业者 (THP) 的深入采访.
- 目的性抽样被用来招募各种THP,包括sangoma,inyanga和umthandazi.
- 解释性现象学分析指导了这项研究,古巴的可信度框架确保了研究的严谨性.
主要成果:
- 对10名THP (3名男性,7名女性) 的采访揭示了五个全球主题:THP实践,对THP的看法,EB患者的经验,诊断和管理计划以及THP的愿景/作用.
- 在THP中观察到不同的观点,但他们对健康和疾病有着共同的非洲世界观.
- 该研究确定了传统治疗实践中对EB管理的各种方法.
结论:
- 了解THP的信念体系和治疗方法对于治疗Epidermolysis Bullosa (EB) 患者的全面和整体管理至关重要.
- 促进传统和全科医生之间的知识交流可以促进更安全的医疗保健实践.
- 这项研究为南非的EB等罕见疾病的潜在协作医疗模式提供了基础的见解.
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