[关于与残疾兄弟姐妹生活在一起的儿童/青少年自我认知的现象学考虑]
Vera Lucia Freitag1, Maria da Graça Corso da Motta2, Gabriel Debatin3
1Universidade de Cruz Alta. Rodovia Municipal Jacob Della Méa km 5,6, Parada Benito. 98005-972 Cruz Alta RS Brasil. verafreitag@hotmail.com.
Ciencia & saude coletiva
|September 6, 2023
概括
与残疾兄弟姐妹生活在一起的儿童和青少年往往会经历照顾差距和情绪压力. 他们的独特挑战需要有针对性的支持和包容性战略,以改善家庭福祉.
科学领域:
- 心理学 心理学 心理学
- 社会学 社会学 社会学
- 儿科 儿科 儿科
背景情况:
- 兄弟姐妹之间的关系是复杂的,特别是当一个兄弟姐妹有残疾时.
- 非残疾兄弟姐妹的自我认知是一个研究不足的领域.
- 了解这些经验对于开发支持性干预至关重要.
研究的目的:
- 探索与残疾兄弟姐妹生活在一起的儿童和青少年的自我认知.
- 确定这些人面临的心理社会挑战和脆弱性.
- 为制定包容性护理策略提供信息.
主要方法:
- 使用表述学-现象学方法进行定性研究.
- 在巴西里约格兰德州苏尔州对20名儿童/青少年进行现象学采访.
- 雇佣了现场日记和用于数据分析的解释.
主要成果:
- 参与者报告说,在家庭的关注和照顾方面存在很大的差距.
- 情感上的挑战包括对死亡的恐惧 (祖父母,残疾兄弟姐妹) 和存在性的质疑.
- 确定了父母与子女关系和医疗保健获取方面的弱点.
结论:
- 患有残疾兄弟姐妹的儿童/青少年经历了独特的脆弱性.
- 迫切需要以家庭为中心的护理和心理社会支持.
- 制定包容性战略对于满足他们的特定需求至关重要.
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