WebRA研究:从类风湿性关节炎患者的角度看数字患者教育的机遇和挑战:一项定性研究
Line Raunsbæk Knudsen1, Kirsten Lomborg2, Ellen-Margrethe Hauge1
1Department of Rheumatology, Aarhus University Hospital, Aarhus N, Denmark; Department of Clinical Medicine, Aarhus University, Aarhus N, Denmark.
Patient education and counseling
|September 6, 2023
概括
数字患者教育 (PE) 通过提供灵活性和知识,对类风湿性关节炎 (RA) 自主管理产生积极影响. 然而,整合医疗保健提供者的支持对于最佳的患者结果至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 数字健康数字健康
- 患者教育 患者教育
背景情况:
- 类风湿性关节炎 (RA) 管理需要积极的患者自我管理.
- 数字患者教育 (PE) 提供了一种新的方法来支持RA患者.
研究的目的:
- 为了调查患者对数字PE的看法,用于RA自我管理.
- 了解数字PE如何促进RA患者的自我管理.
主要方法:
- 使用个人访谈进行定性研究.
- 解释性描述方法应用于从数字PE试验中故意选择的RA患者.
主要成果:
- 患者报告了对数字PE的积极看法,理由是灵活性,重复性和可访问性.
- 关键障碍包括医疗保健提供者 (HCP) 对关系支持的未满足需求.
- 数字PE增强了知识的获取,但HCP的支持和积极的应对态度对于自我管理至关重要.
结论:
- 数字PE是RA自我管理支持的宝贵工具.
- 未来的数字PE策略应该提供多种形式,以满足患者的各种需求.
- 根据个人偏好定制数字PE对于有效的自我管理支持至关重要.
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