在家庭中描述生命终端的沟通
Melanie A Horning1, Mary Elizabeth Bowen2
1Department of Nursing, Towson University, 8000 York Road, Towson, MD 21252, USA.
Palliative care and social practice
|September 7, 2023
概括
家庭沟通模式会影响人们对生命终结的讨论. 多元家庭,有开放的沟通,比保护家庭更多地参与了生命结束的谈话,突出了沟通沟通.
科学领域:
- 社会科学 社会科学 社会科学
- 卫生沟通健康沟通
- 家庭研究 家庭研究
背景情况:
- 慢性疾病进展的不确定性往往会推迟家庭内关键的生命结束讨论.
- 延迟讨论可能会导致未表达的愿望,增加决策不确定性和延迟临终关怀.
- 家庭沟通模式理论 (FCPT) 认为,家庭沟通风格会影响生命结束时的对话,临终关怀和"良好的死亡"的体验.
研究的目的:
- 检查通过对话和合规性取向定义的家庭沟通模式如何与生命结束讨论的频率和时间有关.
- 确定四种家庭沟通模式 (协商,多元化,保护性,自由放任) 与生命终端沟通之间的关联.
主要方法:
- 一项涉及56名死于慢性疾病而接受宿舍护理的个人家属的横截面研究.
- 参与者完成了在线调查,评估了家庭沟通模式 (修改的RFCP) 和慢性疾病严重程度 (CIRS).
- 调查问题还捕捉了生命结束讨论的数量和时间,以及住院入学时间;使用SPSS进行了描述性分析.
主要成果:
- 大多数家庭被认定为多元家庭 (42.9%),其特点是高度的对话和低的符合性取向.
- 很大一部分家庭是保护性的 (39.29%),谈话很少,符合性倾向很高.
- 与保护家庭相比,多元家庭报告了更多的生命结束对话.
结论:
- 研究结果表明,特定的家庭沟通模式与参与生命终结讨论的可能性之间存在联系.
- 这项研究提供了使用FCPT的初步支持,以确定面临延迟或无效生命终端沟通风险的家庭.
- 未来的研究应该探索住院入院时间和死亡体验质量的影响;临床医生可以利用这些见解进行及时干预.
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