神经瘤病患者中社会负担和未成年儿童的频率
Marcel A Kamp1, Christiane von Sass2, Donjetë Januzi2
1Centre of Neuro-Oncology, Department of Neurosurgery, Jena University Hospital, Friedrich-Schiller-University Jena, Jena, Germany. marcelalexander.kamp@mhb-fontane.de.
Journal of cancer research and clinical oncology
|September 7, 2023
概括
近18%的恶性脑瘤患者有未成年子女. 令人惊的是,这些患者报告说,他们的痛苦较少,生活质量更好,这表明孩子可以是一个积极的资源.
科学领域:
- 神经瘤学神经瘤学
- 心理社会瘤学
- 生活质量研究 研究 生命质量研究
背景情况:
- 大脑瘤给患者和家人带来了重大的身体,心理和社会负担.
- 恶性脑瘤和未成年子女可能会加重患者的负担.
- 社会负担的患病率和神经瘤学患者与未成年儿童的比例在很大程度上是未知的.
研究的目的:
- 为了确定神经瘤学患者社会和家庭功能障碍的频率.
- 确定这些患有未成年子女的患者的百分比.
- 评估与脑瘤相关的心理社会负担,特别是对于那些有小孩的人.
主要方法:
- 一项追溯性研究,涉及881名脑瘤患者22个月.
- 患者填写了有关人口统计,EORTC-QLQ-C30,EORTC-BN20和应急温度计的问卷.
- 用 macOS 的 Prism 9 进行数据分析.
主要成果:
- 超过一半的患者和超过65%的恶性瘤患者因疾病而经历了社会/家庭生活的干扰.
- 大约27%的患者报告中度至严重的痛苦.
- 在恶性脑瘤患者中,有17.9%的患者有未成年子女,这与更少的痛苦和更好的生活质量有关.
结论:
- 很大一部分恶性脑瘤患者有未成年子女.
- 有未成年子女可以作为一个保护因素,与较低的痛苦和改善生活质量相关.
- 这些发现强调了在对脑瘤患者的心理社会护理中考虑家庭动态的重要性.
关键词:
大脑转移的发生.孩子 孩子 孩子 孩子质母细胞瘤 (glioblastoma) 是一个质瘤是一种质瘤.恶性脑瘤是恶性的脑瘤.神经息护理是一种神经息护理.抚慰性护理是一项非常重要的护理.精神瘤学困扰 精神瘤学困扰未成年儿童未成年儿童更多相关视频
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