一个包含基于研究的知识和疼痛自我管理工具的网站的体验和可用性:在高影响性慢性疼痛患者中进行的一项混合方法研究
Eva Laerkner1,2, Laila Bendix3, Madalina Jäger4,5
1Department of Anesthesiology and Intensive Care, Odense University Hospital, Odense, Denmark.
Scandinavian journal of pain
|September 8, 2023
概括
患有高影响性慢性疼痛的患者发现Smerteinfo.dk网站对可访问的,基于研究的知识有价值. 一般医生的早期引入可以提高其用于慢性疼痛自我管理的使用.
科学领域:
- 医疗信息学 医疗信息学
- 慢性疼痛管理 慢性疼痛管理
- 数字健康干预措施 数字健康干预措施
背景情况:
- Smerteinfo.dk以普通语言提供基于研究的慢性疼痛知识.
- 它侧重于慢性疼痛的信息,指导和自我管理工具.
- 由卫生专业人员和患有高影响性慢性疼痛的个人共同开发.
研究的目的:
- 为了探索患者对Smerteinfo.dk.dk的体验.
- 评估网站的感知可用性和挑战.
- 了解高冲击性慢性疼痛患者如何与数字资源互动.
主要方法:
- 采用混合方法方法,将定性访谈和定量调查结合起来.
- 与11名患者进行了半结构化采访,大声思考和参与者观察.
- 在疼痛中心等候名单上的200名患者中分发了调查.
主要成果:
- 患者喜欢轻松获取知识,但希望获得更个性化的信息.
- 挑战包括网站导航,内容格式 (文本繁重,许多链接) 和一般信息.
- 87%的人发现文章易于理解; 73%的人认识到他们的挑战. 56%的受访者报告说,他们更好地理解了疼痛,33%的受访者说他们更好地应对了疼痛,33%的受访者说他们改变了生活方式.
结论:
- Smerteinfo.dk对于患有高影响性慢性疼痛的患者来说是一个宝贵的资源.
- 建议一般医生早些时候进行介绍.
- 持续改进和与最终用户的合作对于未来的可用性至关重要.
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