揭示患有腹腔疾病的个体的担忧和需求:一个横截面研究
Maialen Vázquez-Polo1,2, Virginia Navarro1,2, Idoia Larretxi1,2,3
1Gluten 3S Research Group, Department of Nutrition and Food Science, Faculty of Pharmacy, University of the Basque Country UPV/EHU, 01006 Vitoria-Gasteiz, Spain.
Nutrients
|September 9, 2023
概括
患有乳病 (CD) 的人及其支持者面临着重大的社会挑战,并有未满足的教育需求. 提高公众对CD的认识可以提高患者的生活质量.
科学领域:
- 胃肠病学 胃肠病学
- 公共卫生 公共卫生
- 饮食科学 饮食科学
背景情况:
- 乳病 (CD) 管理需要严格的无质饮食,为患者带来日常挑战.
- 了解患者的不确定性对于开发有效的教育干预至关重要.
- 社会限制和知识差距会影响CD患者的生活质量.
研究的目的:
- 调查患有腹腔疾病的个体及其支持者的知识,关切和需求.
- 确定改善患者教育和支持系统的关键领域.
- 评估一般人口意识对乳患者生活质量的影响.
主要方法:
- 设计了一份定制问卷以收集关于乳病知识和担忧的数据.
- 该调查通过Instagram社交网络传播,收集了300名参与者的回复.
- 参与者的担忧和疾病知识被评分在1-4级.
主要成果:
- 报告说,人们对社交限制,包括外出用餐和共享食物,有很大的担忧 (平均得分3.5/4).
- 85%的参与者认为社会限制是他们主要关注的问题.
- 参与者表现出对CD的合理理解 (平均知识分数为2.92/4).
结论:
- 对于患有乳病的人来说,社会限制是一个主要的挑战.
- 患者希望提高一般人群对乳病的知识,以改善他们的生活质量.
- 教育努力应该超越患者,包括家人,朋友和食品服务提供商.
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