保持隐藏:PD中耻辱的负担
Bradley McDaniels1, Gregory M Pontone2, Soania Mathur3
1Department of Rehabilitation and Health Services, University of North Texas, Denton, TX, USA.
Parkinsonism & related disorders
|September 9, 2023
概括
耻辱显著影响帕金森病 (PD) 患者的生活质量,影响精神和身体健康. 了解和解决耻辱是为提供更好的护理和支持给患有PD的个体至关重要的.
科学领域:
- 神经学 神经学
- 精神病学是一个精神病学.
- 社会科学 社会科学 社会科学
背景情况:
- 帕金森病 (PD) 带来了众多挑战,而耻辱正成为影响患者生活质量的重要因素.
- 定量和定性研究证实,大多数患有PD的个人经历了耻辱感,导致对心理和身体健康产生不利影响.
- 在PD中的耻辱与希望,自尊,自我效能降低有关,并可能导致社会焦虑,孤立和不愿寻求医疗护理.
研究的目的:
- 审查耻辱对被诊断患有帕金森病的个人的多方面的影响.
- 探索向生物心理社会模型的转变,了解幸福感,并纳入环境因素,如耻辱感.
- 提供实用,主动的策略来管理和减轻帕金森病社区中耻辱的负面影响.
主要方法:
- 关于帕金森病中耻辱的定性和定量研究的文献综述.
- 对耻辱的心理和社会后果的分析.
- 综合现有知识,提出实际的管理策略.
主要成果:
- 耻辱是帕金森病中普遍存在的问题,显著降低了生活质量.
- 经历耻辱与较差的健康结果相关,包括心理健康下降和希望减少.
- 耻辱感会导致社会退缩,焦虑和避免医疗保健服务.
结论:
- 与帕金森病相关的耻辱的负担很大,并影响了整体的生活质量.
- 对于临床医生来说,全面了解耻辱的作用至关重要,以提供同情和主动的护理.
- 解决污名化问题可以赋予患有PD的个体权力,并改善他们的应对机制和福祉.
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