认可患者合作伙伴对健康研究的贡献:报告实践的系统审查
Grace Fox1, Manoj M Lalu2,3,4,5, Tara Sabloff6
1School of Epidemiology and Public Health, University of Ottawa, Ottawa, ON, Canada.
Research involvement and engagement
|September 9, 2023
概括
大多数研究都承认患者的合作伙伴有非财务报酬,比如共同撰写. 财政补偿不太常见,资金和机构政策是研究人员的主要障碍.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与研究.
背景情况:
- 患者参与研究涉及研究人员和具有实践经验的个人之间的合作.
- 患者合作伙伴的报酬,无论是非金融还是金融,都承认他们的时间和精力.
- 目前在研究中对患者伴侣补偿的现行做法和报告尚未得到充分理解.
研究的目的:
- 评估研究研究中报告的患者伴侣补偿的流行情况.
- 确定特定的非金融和金融补偿实践.
- 确定为患者合作伙伴提供经济补偿的障碍和促进因素.
主要方法:
- 对引用GRIPP (患者和公众参与报告指南) 检查清单的研究进行系统审查.
- 包括参与患者作为研究合作伙伴的研究.
- 提取有关补偿方法,障碍和支持者的数据;描述性和专题分析.
主要成果:
- 在316项符合条件的研究中,91%报告了患者合作伙伴的某种形式的补偿.
- 非金融补偿是常见的:非正式承认 (65%) 和共同作者 (49%).
- 只有25%的人报告了财政补偿,10%的人报告没有财政补偿,65%的人没有报告财政补偿细节. 主要障碍包括缺乏资金和制度政策.
结论:
- 大多数发表的研究研究都使用非金融方法补偿患者的合作伙伴.
- 研究人员需要额外的指导和支持,以克服为患者合作伙伴实施财政补偿的障碍.
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