照顾者的经验,有一个孩子患有脑性麻. 一个元合成
Maggie Dumsile Dlamini1, Ying-Ju Chang2, Tram Thi Bich Nguyen3
1Department of Nursing, College of Medicine, National Cheng Kung University, No1 University Road, Tainan 70101, Taiwan; Department of Nursing, Eswatini Christian Medical University, Lomkiri Portion 69 of Farm 73, Zone 4, Mbabane, Hhohho, Swaziland.
Journal of pediatric nursing
|September 10, 2023
概括
脑儿童的照顾者面临着重大挑战,包括需要更好的医疗保健,财政援助和社会支持. 由于压倒性的护理负担,许多人经历了心理和身体的约束.
科学领域:
- 质量健康研究 质量健康研究
- 护理人员研究 护理人员研究
- 儿科健康 儿科健康
背景情况:
- 照顾患有脑的孩子给家庭带来了独特和多方面的挑战.
- 了解护理人员的经验对于开发有效的支持系统至关重要.
研究的目的:
- 综合对脑儿童的照顾者所面临的经验和挑战的定性研究.
- 确定影响护理人员福祉和日常生活的关键主题.
主要方法:
- 定性研究的系统审查和元综合.
- 在四个数据库 (CINAHL,Embase,OVID Medline,Cochrane) 搜索了2022年12月之前发表的论文.
- 内容主题分析用于综合12项纳入研究的发现.
主要成果:
- 从67个提取的发现中,出现了11个子主题和5个综合主题.
- 关键主题包括:需要可访问的医疗保健/公共场所,需要信息/财政援助,心理/身体限制,社会耻辱和压倒性的护理负担.
- 照顾者经常对生活方式做出重大调整,比如离开工作或减少休活动.
结论:
- 患有脑的儿童的照顾者在适应他们的生活时遇到重大障碍.
- 应对这些挑战需要改善医疗保健的可访问性,财政支持和社会融合.
- 支持干预应侧重于减轻这些护理人员所经历的心理,身体和社会负担.
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