来自虚空的喊叫:围绕在线慢性疾病社区的混合方法分析,NEISVoid
Tahleen A Lattimer1, Kelly E Tenzek1, Yotam Ophir1
1Department of Communication, University at Buffalo.
Health communication
|September 10, 2023
概括
推特上的#NEISVoid社区分享慢性疾病的经验,强调社区,症状管理和医疗保健方面的挑战. 这项研究分析了他们的话语,以改善患者支持和健康沟通.
科学领域:
- 卫生沟通健康沟通
- 社交媒体分析
- 慢性病患者的经历 慢性病患者的经历
背景情况:
- 慢性疾病的管理是复杂的,经常被负面的医疗保健遭遇所玷污.
- 社交媒体上的患者社区提供了至关重要的支持和共享经验.
- NEISVoid (No End In Sight) 社区使用推特来表达他们的斗争.
研究的目的:
- 为了分析#NEISVoid Twitter社区的言论.
- 确定慢性疾病患者体验中的关键主题.
- 了解标签激进主义在健康传播中的作用.
主要方法:
- 使用ANTMN方法进行混合方法分析.
- 分析了从2020年1月到2022年9月的450,914条推特.
- 通过慢性护理模型 (CCM) 对话的专题分析.
主要成果:
- 确定了四个主要的演讲主题:社区经验,症状管理,疗效解决方案和生物医学健康.
- 揭示了同行支持的重要性,以及在慢性疾病管理中分享经验.
- 突出了医疗保健遭遇的挑战,以及改善提供者沟通的需要.
结论:
- 像Twitter这样的社交媒体平台为慢性疾病的关键患者社区提供了便利.
- 了解患者话语对于开发有效的健康沟通策略至关重要.
- 对医疗保健提供者和沟通人员的影响,以更好地支持患有慢性疾病的患者.
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