与澳大利亚维多利亚州的自愿辅助死亡系统连接的障碍:一种定性混合方法研究
Ben P White1, Ruthie Jeanneret1, Lindy Willmott1
1Australian Centre for Health Law Research, Faculty of Business and Law, Queensland University of Technology, Brisbane, Queensland, Australia.
概括
在维多利亚州,由于几个障碍,获得自愿辅助死亡 (VAD) 很困难. 提高社区意识和取消禁止医生提起VAD的禁令对于更好的患者准入至关重要.
科学领域:
- 医疗法律和伦理学
- 抚慰性护理是一种缓解性护理.
- 卫生社会学 卫生社会学
背景情况:
- 自愿辅助死亡 (VAD) 法律正在全球范围内扩大,所有澳大利亚州现在都制定了此类立法.
- 澳大利亚维多利亚州的早期研究表明,患者在访问VAD系统时面临重大挑战.
- 了解这些"接入点"障碍对于改善患者体验和系统导航至关重要.
研究的目的:
- 分析阻止患者进入维多利亚州自愿辅助死亡 (VAD) 系统的具体障碍.
- 确定寻求VAD.的个人所面临的"接入点"挑战的根本原因.
- 为改善VAD系统可访问性提供基于证据的建议.
主要方法:
- 进行了半结构化的定性采访,对32名家庭护理人员和1名寻求VAD的患者进行了采访.
- 通过社交媒体和患者利益集团招募参与者.
- 进行了面试数据的专题分析和来自自愿辅助死亡审查委员会的六份公开报告的文献分析.
主要成果:
- 参与者和官方报告一致认为,找到VAD系统的接入点是具有挑战性的.
- 确定了四个关键障碍:缺乏对VAD作为一种选择的认识,难以识别资格,难以导航程序步骤的挑战,以及禁止医生启动VAD讨论.
- 患者和护理人员的经验凸显了与VAD服务连接的实际和系统性困难.
结论:
- 法律,政策和实践改革至关重要,以促进患者获得VAD.
- 建议废除对医生提升VAD的法律禁令,并为不愿参与的医疗保健提供者建立明确的转诊途径.
- 倡导社区宣传举措,向公众通报维多利亚州的VAD可用性和流程.
相关概念视频
01:21Barriers to Effective Communication II
3.7K
The barriers to effective communication also include cultural barriers, semantic barriers, gender barriers, and time constraints.
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
3.7K
01:30Barriers to Effective Communication I
8.9K
A communication barrier is any distortion or interruption during a conversation, resulting in miscommunication of the message. A good communicator should know these barriers and continuously check for the listener's understanding by obtaining feedback.
Communication barriers include the following:
Physiological barriers: They are limitations caused by a person's health condition or disability, such as hearing loss, poor eyesight, illness, or unconsciousness. An example to overcome this...
Communication barriers include the following:
Physiological barriers: They are limitations caused by a person's health condition or disability, such as hearing loss, poor eyesight, illness, or unconsciousness. An example to overcome this...
8.9K
01:30Ethical Dilemmas II
1.1K
Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
1.1K
01:21Tertiary Healthcare System
1.8K
Specialized care provided over an extended period is called tertiary care. Usually, a primary or secondary care physician will refer a patient to tertiary care. A patient's maximum physical and mental function is restored in tertiary care, which is caused due to the impact of a chronic illness or condition. Tertiary care aims to achieve the highest level of functioning possible while managing chronic illness. For example, a patient who falls and fractures their hip will need secondary care...
1.8K
01:27Ethical Issues
1.0K
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Concerns in Healthcare:
1.0K
01:25Physiological Barriers
3.6K
Physiological barriers are semi-permeable cellular structures restricting drug diffusion into intracellular compartments and tissues. There are six types of physiological barriers: blood endothelial, cell membrane, blood-brain, blood-cerebrospinal fluid (CSF), blood-placenta, and blood-testis barriers.
The blood endothelial barrier is the most porous of these. It allows all small ionized, un-ionized, and lipophilic molecules to pass through the endothelial lining into the interstitial space...
The blood endothelial barrier is the most porous of these. It allows all small ionized, un-ionized, and lipophilic molecules to pass through the endothelial lining into the interstitial space...
3.6K