罕见疾病的手工表现:拼贴作为定性调查
Richard Gorman1, Bobbie Farsides1, Maria Bonner2
1Department of Clinical and Experimental Medicine, Brighton and Sussex Medical School, BSMS Teaching Building, University of Sussex, Brighton, UK.
Arts & health
|September 11, 2023
概括
使用拼贴的基于艺术的研究可以帮助患有罕见疾病的家庭表达复杂的经历. 这种方法促进了关于挑战的开放对话,提高了对他们独特旅程的理解.
科学领域:
- 基于艺术的研究.
- 定性方法论的定性方法论.
- 家庭研究 家庭研究
背景情况:
- 拼贴作为一种表达方式,涉及到碎片的重新利用.
- 基于艺术的研究方法可以为生活经验提供新的见解.
研究的目的:
- 探索拼贴作为一种以艺术为基础的研究方法,如何提高对罕见疾病家庭经验的理解.
- 调查拼贴画对激活家庭对罕见疾病的观点的贡献.
主要方法:
- 与受到罕见疾病影响的家庭进行了为期10周的拼接研讨会.
- 参与者创造了他们经历的艺术表现.
- 该方法促进了对挑战的公开讨论的支持性环境.
主要成果:
- 拼贴和相关的对话提供了洞察力,了解受罕见疾病影响的家庭的复杂位置.
- 出现的关键主题包括母性,照顾,沟通障碍和管理医疗.
- 艺术媒介促进了对罕见疾病影响的家庭生活的细微反思.
结论:
- 拼贴提供了一个安全和富有表现力的媒介,可以讨论敏感和难以捉摸的主题.
- 基于艺术的方法促进了关于罕见病的挑战的公开沟通.
- 这种方法通过提供一种非威胁的途径来表达复杂的感受和经验,从而使理解更加活跃.
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