欧洲自闭症护理途径
Maria A Mendez1,2, Bethany Oakley3,4, Roberto Canitano5
1Instituto de Investigación Sanitaria Gregorio Marañón, Hospital General Universitario Gregorio Marañón, Madrid, Spain.
概括
在欧洲,早期的自闭症检测和干预面临着显著的延迟. 协调政策对于改善自闭症患者及其家属的旅程至关重要,确保及时支持和诊断.
科学领域:
- 神经发育障碍 神经发育障碍
- 公共卫生政策 公共卫生政策
- 获得医疗保健 获得医疗保健 获得医疗保健
背景情况:
- 自闭症谱系障碍 (ASD) 是一种复杂的神经发育状况,影响个人和家庭.
- 缺乏协调的欧洲指导方针阻碍了对自闭症的有效早期发现,诊断和干预.
- 这导致自闭症患者及其护理人员的体验不足.
研究的目的:
- 分析意大利,西班牙和英国自闭症儿童和青少年的护理途径.
- 识别障碍和治疗缺口,以获取信息,支持和及时服务,自闭症患者及其家人.
- 为改善自闭症护理旅程提供政策建议.
主要方法:
- 一项针对0-18岁自闭症儿童的照顾者进行的调查.
- 从护理人员,自闭症社区和专业人员的角度分析自闭症护理途径.
- 意大利,西班牙和英国护理经验的跨国比较.
主要成果:
- 在最初的担忧和确认的自闭症诊断之间观察到显著的延迟.
- 诊断后的干预措施的获取频繁延迟或无法获得.
- 在整个自闭症旅程中,为家庭提供信息和支持是有限和不足的.
结论:
- 欧洲范围内的政策协调对于减少自闭症诊断和干预等待时间至关重要.
- 改善护理途径将提高自闭症患者及其家人的生活质量.
- 解决已识别的障碍对于一个更公平,更有效的自闭症支持系统至关重要.
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