相关实验视频
Updated: Jul 16, 2025

Working with Human Tissues for Translational Cancer Research
Published on: November 26, 2015
[朝着更知情的同意:使信息更易于理解]
Diane Gozlan1, Marion Mathieu1, Sandrine de Montgolfier1
1Collège des relecteurs de l'Inserm, groupe de travail « Notices d'information », Inserm, Service sciences et société - Département information scientifique et communication, Paris, France.
临床研究中的信息通知通常是复杂的. 一个新的应用程序,Noticeinfobox©,使用可访问的语言和图像简化这些文件,赋予患者和研究人员权力.
科学领域:
- 临床研究伦理学
- 患者沟通 患者沟通
- 健康信息的可访问性,健康信息的可访问性.
背景情况:
- 临床研究中的信息通知往往很难让患者理解.
- 确保透明和真实的信息是所有人的基本权利.
研究的目的:
- 为临床研究信息公告制定一个可访问和易理解的格式.
- 改善患者对医疗保健决策和研究的理解和参与.
主要方法:
- 成立了一个多学科工作组,包括医疗保健专业人员,患者代表,伦理学家和沟通专家.
- 开发了一套信息公告的文本,图标和插图.
- 将这些材料集成到专业用途的通知infobox©应用程序中.
主要成果:
- 该通知infobox©应用程序提供了易于使用的内容,适应不同的受众.
- 一个试点阶段成功生成了法国基因组医学计划2025的通知,专门用于基因检查.
- 该应用程序为基因组医学计划的参与者提供了清晰易懂的信息.
结论:
- 该应用程序的通知infobox©解决了社会需要更大的患者参与医疗保健.
- 它通过提高透明度和理解来促进更道德和负责任的研究.
- 该工具使个人能够积极参与他们的医疗保健和研究旅程.
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