审查在癌症背景下使用信息需求评估工具的发展:范围和批判性审查
Maclean Thiessen1,2, Daranne Harris1, Patricia A Tang3
1Faculty of Nursing, University of Calgary, Calgary, AB, Canada.
Palliative & supportive care
|September 12, 2023
概括
现有的癌症信息需求评估工具往往缺乏严格性和患者的投入. 需要新的工具来具体解决癌症挑战,并与癌症幸存者合作开发.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者支持 患者支持
背景情况:
- 信息需求是癌症患者的重要未满足的支持性护理需求.
- 关于开发癌症特定信息需求评估工具和患者参与的理解有限.
研究的目的:
- 描述现有的癌症特定信息需求评估工具的开发和预期使用情况.
主要方法:
- 进行了系统的范围审查.
- 该审查遵循了同行评审的协议,并使用了PRISMA-ScR检查清单.
主要成果:
- 确定了21种信息需求评估工具,主要用于乳腺癌或非特异性瘤.
- 患者和非正式照顾者的参与工具开发是有限的,往往发生在过程的晚期.
- 大多数工具都缺乏严格的心理测量评估以确定其有效性和可靠性.
结论:
- 目前的工具往往无法严格评估针对特定癌症挑战的信息需求.
- 需要与经历过癌症的个人合作开发的工具.
- 未来的研究应该探索开发患者知情评估工具的障碍和促进因素.
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