评估REDCap作为汉堡市健康研究的中央数据收集工具
Nils Schönbeck1, Yassin Hussein2, Alena Haack2
1Applied Medical Informatics, University Medical Center Eppendorf, Hamburg, Germany.
Studies in health technology and informatics
|September 12, 2023
概括
将大型临床研究从专有系统转换为开源的研究电子数据捕获 (REDCap) 改进了数据收集. 虽然REDCap显示出潜力,但在像汉堡市卫生研究这样的研究中,为了最佳的可用性,需要集成和扩展.
科学领域:
- 临床研究信息学 临床研究信息学
- 健康数据管理 管理健康数据
背景情况:
- 专有系统用于临床研究数据收集是昂贵和不灵活的.
- 开源工具为增强数据收集和质量提供了可行的替代方案.
研究的目的:
- 评估从专有电子医疗记录 (EHR) 转换到研究电子数据捕获 (REDCap) 的检查数据.
- 评估在汉堡市卫生研究 (HCHS) 中使用REDCap的可行性.
主要方法:
- 将EHR元文件技术转换为REDCap电子案例报告表格 (eCRF).
- 由研究助理使用模拟任务进行可用性测试.
- 通过IBM计算机系统可用性问卷 (CSUQ) 进行定量评估,通过面试进行定性评估.
主要成果:
- REDCap获得了研究助理的中等接受评分 (4.39/10).
- 用户反为开发用户故事提供了信息,以改善管理控制和IT基础设施概念化.
结论:
- 作为大型临床研究的免费数据收集工具,REDCap具有显著的潜力.
- 成功实施需要扩展和整合到现有的IT基础设施.
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