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炎症性肠病患者的种族和民族差异:在线调查
Shamita Shah1, Alicia C Shillington2, Edmond Kato Kabagambe1,3
1Department of Gastroenterology, Ochsner Health, New Orleans, LA, USA.
Inflammatory bowel diseases
|September 13, 2023
概括
与白人/非西班牙裔 (W/NH) 患者相比,患有炎症性肠病 (IBD) 的黑人,土著人和有色人种/西班牙裔 (BIPOC/H) 个人面临着严重的护理障碍,并经历了更糟糕的健康结果. 这些差异包括对专家的访问减少和生活质量下降.
科学领域:
- 胃肠病学和肝病学 胃肠学和肝病学
- 医疗保健服务研究 医疗服务研究
- 健康差异 在健康上的差异
背景情况:
- 关于黑人,土著和有色人种/西班牙裔 (BIPOC/H) 个人患有炎症性肠病 (IBD) 的医疗保健准入和结果的数据有限.
- 本研究通过比较BIPOC/H和白/非西班牙裔 (W/NH) IBD患者在美国大型卫生系统中的护理障碍,疾病状况和结果来解决这一差距.
研究的目的:
- 评估各种IBD患者群体在护理获取,疾病控制和与健康相关的生活质量 (HRQOL) 方面的差异.
- 与W/NH IBD患者相比,识别BIPOC/H IBD患者经历的特定护理障碍.
主要方法:
- 在Ochsner Health向成年IBD患者 (2019年8月至2021年12月) 分发了一项匿名在线调查.
- 收集的数据包括症状,医疗保健获取障碍,HRQOL (Short IBDQ),药物坚持和对药物的信仰.
- 医疗记录提供了医疗保健资源利用数据; 分析比较了W/NH和BIPOC/H组,使用了奇平方和t测试.
主要成果:
- 与W/NH患者相比,BIPOC/H患者报告获得IBD专家的困难较大 (26%对11%),症状控制较差 (35%对18%),HRQOL较低 (平均41对49).
- BIPOC/H个体经历的更多是负面的就业影响 (50%对33%),财务不稳定 (53%对32%) 和社会/情感支持方面的挑战 (64%对37%).
- BIPOC/H患者的急诊室使用率更高 (42%对22%) 和对IBD药物的担忧更大.
结论:
- 与W/NH患者相比,患有IBD的BIPOC/H个体表现出更糟糕的临床疾病和更低的HRQOL.
- 不平等性包括减少专家访问,减少社会支持,以及在BIPOC/HIBD患者中增加紧急护理使用率.
- 解决这些不平等问题对于改善IBD护理和不同人群的治疗结果至关重要.
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