保持联系:阿尔茨海默病标签和参与和克服耻辱的机会
Kelly E Tenzek1, Emily Lapan1, Yotam Ophir1
1359 Department of Communication, Baldy Hall University at Buffalo, Buffalo, NY 14260, United States of America.
Journal of aging studies
|September 13, 2023
概括
在Twitter上讨论阿尔茨海默氏病 (AD) 的重点是减少耻辱和鼓励开放的对话. 分析了超过13万条推特,发现了推广,教育和支持的主题,突出了敏感健康话题的在线话语潜力.
科学领域:
- 社会科学 社会科学 社会科学
- 卫生沟通健康沟通
- 数字健康数字健康
背景情况:
- 阿尔茨海默病 (AD) 是一种被污名化的神经退行性疾病,存在普遍的误解.
- 有效的沟通对于终身护理和丧亲关怀至关重要,但AD讨论面临着独特的挑战.
- 存在的机会模型为理解疾病轨迹提供了一个框架,从生命到死亡,再到悲伤.
研究的目的:
- 在Twitter上检查有关阿尔茨海默病的在线网络讨论.
- 确定围绕AD的公共话语中的关键主题和模式,特别是与耻辱和生命终结沟通有关.
- 探索如何利用社交媒体平台来促进对阿尔茨海默病患者的理解和支持.
主要方法:
- 一种使用主题模型网络 (ANTMN) 框架分析的混合方法方法.
- 从2010年1月1日到2021年9月29日,分析了132,803条与阿尔茨海默病相关的推特帖子和标签.
- 确定并将30个主题分为五个不同的主题:推广,教育,行动",你并不孤单"和痴呆症.
主要成果:
- 从推特数据中出现了五个主要主题:推广,教育,行动",你并不孤单"和痴呆症.
- 讨论,特别是围绕世界阿尔茨海默病日,集中在打击耻辱和鼓励难以对话.
- 这些主题的频率在整个研究期间保持相对一致.
结论:
- 像Twitter这样的平台上的在线话语可以成为解决阿尔茨海默病等污名化的健康话题的宝贵工具.
- 了解这些数字对话可以为减少耻辱的策略提供信息,并加强对那些受AD影响的人的支持系统.
- 在线空间中的定制消息可以帮助克服沟通障碍,并为面临类似健康挑战的个人提供关键支持.
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