:

Kelly E Ormond1, Alessandro Blasimme2, Effy Vayena2

  • 1Department of Health Sciences and Technology, Health Ethics & Policy Lab, ETH Zurich. Hottingerstrasse 10, Zurich 8092, Switzerland; Department of Genetics and Stanford Center for Biomedical Ethics, Stanford University School of Medicine.

PubMed
概括

儿科提供者面临遗传疾病的伦理困境,包括对遗传测试的知情同意和像基因疗法这样的新疗法. 这些问题影响患者的自主权,心理健康和家庭身份.

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