改进,实施和评估CMyLife数字护理平台:参与行动研究方法
Lynn Verweij1, Sanne J J P M Metsemakers1, Geneviève I C G Ector1
1Department of Hematology, Radboud University Medical Center, Nijmegen, Netherlands.
参与行动研究有效地评估了CMyLife数字平台,用于慢性髓性白血病患者. 这种方法改善了患者的赋权,药物坚持和准则坚持,证明了其在电子健康创新的价值.
科学领域:
- 数字健康数字健康
- 电子健康创新 电子健康创新
- 以患者为中心的护理
背景情况:
- 在实践中评估不断发展的电子健康工具仍然具有挑战性.
- 该CMyLife数字护理平台旨在赋予慢性髓性白血病患者权力.
- 重点领域包括药物遵守和生物标志物控制 (BCR-ABL1).
研究的目的:
- 评估参与式行动研究是否适用于电子卫生创新评估.
- 用CMyLife平台来衡量用户体验和患者赋权.
- 在日常临床实践中改进和科学评估电子健康工具.
主要方法:
- 由参与者经验指导的规划,行动和反思的代循环.
- 共设计研讨会为循环过程奠定了基础.
- 问卷评估了3个月和6个月的经验和平台使用情况;进行了内容和描述性分析.
主要成果:
- 共同设计研讨会导致了平台改进和患者赋权.
- 该平台为67%的患者增强了慢性髓性白血病信息提供.
- 42%的患者改善了服药,44%的患者改善了遵循指南.
结论:
- 参与式行动研究适用于评估数字护理平台.
- 代评估确保了以患者为中心的护理,并使创新保持相关性.
- CMyLife平台在改善患者结果和赋权方面取得了成功.
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