探索公众对帕金森病的看法和意识:一个范围审查
Sophie Crooks1, Gillian Carter1, Christine Brown Wilson1
1School of Nursing & Midwifery, Queen's University Belfast, Belfast, Northern Ireland, United Kingdom.
PloS one
|September 15, 2023
概括
公众对帕金森病 (PD) 的认识有限,对其症状,原因和治疗缺乏理解. 本次审查强调需要改善公共教育和宣传活动,以减少PD患者的边缘化.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 社会科学 社会科学 社会科学
背景情况:
- 帕金森病 (PD) 影响了60岁以上的1%的人,导致运动和非运动症状,降低了生活质量.
- 关于PD的公众知识和看法存在有限的研究,这阻碍了社区对受影响个人的支持.
- 了解公众对PD的看法对于开发教育资源来提高意识和理解至关重要.
研究的目的:
- 进行范围审查,综合有关公众对帕金森病患者的看法和态度的文献.
- 确定和描述有关PD的公众意识,知识和态度的关键发现.
- 为未来教育资源的开发提供信息,旨在提高公众对PD的理解.
主要方法:
- 根据PRISMA-ScR指南进行了范围审查.
- 在四个数据库进行了系统搜索:CINAHL Plus,Medline,PsycINFO和IBSS.
- 人口-概念-上下文框架指导研究选择,使用JBI批判性评估工具进行质量评估.
主要成果:
- 包括23项研究 (12项定量,11项混合方法),全部采用横截面设计.
- 关键主题揭示了公众在了解PD症状,原因和治疗方面的缺陷.
- 公众的态度表明,人们意识到与PD相关的社会后果,如抑郁,孤立和失去独立.
结论:
- 公众对PD的认识是一个新兴的研究领域,知识和态度在国际上有所不同.
- 在可用的教育资源中存在很大的差距,以提高公众对PD的理解.
- 需要进一步的研究和有针对性的干预措施,以提高公众对PD患者的认识和支持.
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