现象学研究关于照顾有发育障碍的青春期儿童的母亲的实践经验
1Research Institute of Nursing Innovation, College of Nursing, Kyungpook National University, Daegu, Republic of Korea.
Asian nursing research
|September 16, 2023
概括
照顾有发展障碍的青少年的母亲在青春期面临着独特的挑战,经历了社会边缘化和照顾的重新定义. 这项研究强调他们迫切需要情感支持和社会包容.
科学领域:
- 发展心理学 发展心理学
- 卫生社会学 卫生社会学
- 定性研究方法 定性研究方法
背景情况:
- 照顾有发展障碍 (DDs) 的孩子给母亲带来了持续的挑战.
- 青春期的过渡为患有DD的孩子和他们的照顾者带来了独特的压力.
- 了解这些母亲的生活经历对于开发有效的支持系统至关重要.
研究的目的:
- 探索和揭示在韩国照顾有发育障碍的青春期儿童的母亲的生活经历.
- 确定母亲在这个发育阶段所面临的具体挑战和适应.
- 为改善对这些家庭的支持和理解提供基础.
主要方法:
- 采用现象学方法,利用乔治的分析.
- 数据是通过对9名母亲进行半结构化深度采访来收集的.
- 这项研究的重点是制定母亲的护理经验的总体结构.
主要成果:
- 母亲的经历被分为四个主题:受阻于成长的快乐,社会边缘化,社会排斥和重新安排的护理方向.
- 关键的发现表明,青春期标志着一个关键点,母亲们认识到孩子的残疾不可分割,并调整护理目标.
- 身体,情感和关系上的困难都被生动地描绘出来.
结论:
- 青春期显著影响母亲对DDS儿童的看法和照顾方法.
- 母亲需要紧急的情感支持和融入护理.
- 结果可以提高医疗保健专业人员的理解和公众的残疾意识.
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