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芬兰脊椎注册表 (FinSpine):开发,设计,验证和实用性

Johan Marjamaa¹, Jukka Huttunen², Jyrki Kankare³

¹Department of Neurosurgery, Helsinki University Hospital, Helsinki, Finland. johan.marjamaa@hus.fi.

European spine journal : official publication of the European Spine Society, the European Spinal Deformity Society, and the European Section of the Cervical Spine Research Society

|September 17, 2023

概括

芬兰开发了全国性的脊柱登记册 (FinSpine),以监测外科手术质量和患者的治疗结果. 该注册表正在扩大,旨在提供全面的数据,以提高脊柱治疗的有效性和患者的生活质量.

科学领域:

医疗保健服务研究医疗服务研究
改善外科手术的质量
患者研究成果研究结果

背景情况:

需要一个集中式系统来跟踪手术活动和脊柱护理患者的结果.
收集前性,现实世界的脊柱手术效率和质量数据的挑战.

研究的目的:

在芬兰开发和实施一个全国性的,基于计算机的脊椎名册 (FinSpine).
监测手术活动,护理质量,长期结果和治疗有效性.
为了方便收集患者报告的结果和经验指标 (PROM和PREM).

主要方法:

由骨科和神经外科医生的国家指导小组开发.
专注于活跃的外科医生使用,前性数据收集和高患者响应率.
促进PROMs/PREMs的全国采用和整合.

主要成果:

FinSpine于2016年推出,从2023年开始获得持续资金.
目前由83%的公立医院采用,扩展到私营部门.
外科医生的反应率为80%;患者的反应率平均为56% (与协调员一起高达90%).

结论:

越来越多地采用FinSpine,数据的完整性将使强大的研究成为可能.
数据可以为决策提供信息,以提高患者的治疗结果和生活质量.
FinSpine的可比性措施允许与国际脊柱登记处进行比较.

关键词:

治疗的有效性治疗的有效性结果结果的结果.在这种情况下,Prom是Prom.脊柱登记册脊柱登记册脊柱登记册脊柱登记册脊柱外科手术脊柱外科手术

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