在数字研究中与不同人群合作的伦理要求
Jonathan Herington1, Kay Connelly2,3, Judy Illes4
1Department of Health Humanities and Bioethics, University of Rochester, Rochester, NY, United States.
Journal of medical Internet research
|September 18, 2023
概括
数字健康研究必须包括多样化的群体. 当前的伦理框架未能保护代表性不足的群体,需要参与的方法来实现正义和包容性.
科学领域:
- 数字健康数字健康
- 卫生技术 卫生技术 卫生技术
- 研究伦理研究伦理学
背景情况:
- 数字研究方法正在改变医疗技术.
- 目前的数字健康研究缺乏与多样化和代表性不足的人群的接触.
- 现有的伦理框架对于包容性数字研究是不够的.
研究的目的:
- 探索涉及不同人群参与数字健康研究的伦理要求.
- 分析代表性不足的群体在招聘,风险评估和保密方面的挑战.
- 批判性地评估当前关于包容性的研究伦理框架.
主要方法:
- 分析现有的研究伦理框架.
- 探索各种参与的伦理要求.
- 审查数字研究招聘和保密方面的挑战.
主要成果:
- 个人主义和专注于自主性的伦理模型在数字研究中不充分保护多样化的群体.
- 目前的框架不符合正义和包容性的要求.
- 需要对参与性实践进行重新定位.
结论:
- 数字健康研究需要道德框架,优先考虑正义和包容性.
- 参与式方法对于与多样化的群体进行道德接触至关重要.
- 重新思考研究伦理对于健康技术的公平进步至关重要.
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