儿童康复家庭需求问卷的开发和评估
Caron Gan1, Kristina Chernodon1, F Virginia Wright1,2,3
1Bloorview Research Institute, Toronto, Ontario, Canada.
Child: care, health and development
|September 19, 2023
概括
家庭需求问卷-儿科康复 (FNQ-PR) 是残疾儿童的照顾者报告未满足需求的可靠工具. 这份经过验证的问卷帮助临床医生识别和解决儿童康复中的家庭优先事项.
科学领域:
- 儿科康复儿童康复中心
- 以家庭为中心的护理
- 关于残疾人的研究.
背景情况:
- 儿科康复服务旨在改善残疾儿童的治疗结果.
- 评估家庭需求对于有效和整体的护理至关重要.
- 在这种情况下,现有的工具可能无法充分捕捉到家庭的具体需求.
研究的目的:
- 开发和验证家庭需求问卷-儿科康复 (FNQ-PR) 作为护理人员的自我报告措施.
- 评估FNQ-PR的可靠性和并发有效性.
- 提供一种系统的方法来识别儿童康复中护理人员所感知的需求.
主要方法:
- 39项FNQ-PR是使用修改后的Delphi技术开发的.
- 测试重复测试可靠性通过在线调查 (REDCap) 以1-3周的间隔进行评估.
- 同时有效性是使用家庭规模的影响 (IFS-15) 和护理过程测量 (MPOC-20) 来评估的.
主要成果:
- 该FNQ-PR表现出卓越的测试复试可靠性 (ICC = 0.84) 和高内部一致性.
- 在FNQ-PR和IFS-15总分之间发现了强烈的负相关性 (r = -0.62).
- 在FNQ-PR和MPOC分量级得分 (0.45 ≤ r ≤ 0.70) 之间观察到相当强的关联.
结论:
- FNQ-PR是评估儿童康复家庭需求的可靠和有效措施.
- 本问卷通过系统地识别未满足的家庭需求来解决临床实践中的差距.
- FNQ-PR可以指导临床医生针对干预措施,并为未来的研究提供有关影响需求的家庭因素的信息.
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