极度过早出生的成年人关于在产前决策中需要考虑什么的观点:定性焦点小组研究
Angret de Boer1,2, Lien De Proost3, Marieke de Vries4
1Department of Obstetrics and Gynecology, Leiden University Medical Center, Leiden, The Netherlands a.h.a.de_boer@lumc.nl.
Archives of disease in childhood. Fetal and neonatal edition
|September 19, 2023
概括
极其早产的成年人重视生存,生活质量和家庭对在生存能力极限时做出的决定的影响. 他们的观点强调了对未来的父母和医疗保健专业人员进行个性化预后和全面信息的需要.
科学领域:
- 新生儿科学 新生儿科学
- 围产儿医学 围产儿医学
- 生物伦理学生物伦理学
背景情况:
- 分享决策 (SDM) 建议在生命能力极限的产前决策中优先考虑父母的价值观.
- 对于这些关键决策的极其早产的个体的观点在很大程度上是未经记录的.
- 了解这些生活经验对于完善新生儿护理中的SDM至关重要.
研究的目的:
- 描述极早出生的成年人对于生命能力极限的决策的观点.
- 从患者的角度来看,确定影响这些关键产前选择的关键因素.
主要方法:
- 进行了半结构化的焦点小组讨论,与怀孕24至30周之间出生的成年人进行了讨论.
- 两位独立研究人员使用Atlas.ti转录和分析了定性数据.
- 探讨了参与者对他们出生情况及其对他们的生活和家庭的影响的反思.
主要成果:
- 参与者强调了预期的父母遗憾和希望给婴儿生存的机会.
- 关键的考虑因素包括出生后看到婴儿的重要性,生活质量,以及婴儿和家庭的长期结果.
- 宗教或精神信仰也成为决策的重要因素.
结论:
- 极其早产的成年人提供了有价值的见解,可以了解支生命限度的决策的价值观.
- 需要更多个性化的预后预测和详细的信息,说明极端早产的终身后果.
- 增强信息和个性化预测可以更好地支持未来的父母和医疗保健提供者的价值负担决策.
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