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在设计计算机化的口腔和唇状细胞癌症注册表时,应该做什么和不应该做什么
Leila Shahmoradi1, Nazanin Mahdavi2, Hana Saffar3
1Health Information Management and Medical Informatics Department, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran.
BMC health services research
|September 19, 2023
概括
这项研究确定了伊朗口腔和唇状细胞癌症注册系统的最低数据集. 这旨在通过标准化的信息元素来改善癌症数据收集和患者护理.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
背景情况:
- 在全球范围内,各国正在开发针对常见疾病和癌症的疾病登记系统.
- 伊朗试图建立一个强大的口腔和唇部状细胞癌的登记系统.
研究的目的:
- 确定和识别伊朗口腔和唇状细胞癌症注册系统的最低数据集 (MDS).
主要方法:
- 对科学论文,指南和文章进行文献审查,以提取主要信息元素.
- 通过与29名专家小组成员的重点小组会议开发和验证研究人员制作的问卷.
- 与专家一起进行的最后调查,以完善问卷和完成数据集.
主要成果:
- 针对癌症注册,确定了一个包含10个主要部分的114个项目的最低数据集.
- 关键数据元素包括患者人口统计,临床信息,诊断,治疗细节 (手术,放射治疗) 和随访.
- 开发了一个模型,结合注册系统的独特特征,如程序标题,人口,目标和诊断技术.
结论:
- 实施标准化的疾病登记册可以提高及时访问医疗记录和患者护理信息的机会.
- 标准化表格和信息元素对于有效的患者随访和综合的国家健康信息系统至关重要.
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