参与式方法开发实用手册,整合健康信息,以支持轻度认知障碍患者及其家属
Yujiro Kuroda1, Aya Goto2, Taiki Sugimoto1
1Department of Prevention and Care Science, Center for Development of Advanced Medicine for Dementia, National Center for Geriatrics and Gerontology, Obu, Japan.
概括
一本针对轻度认知障碍 (MCI) 的新手册是利用患者的意见开发出来的. 本指南整合了生活方式的改变和心理支持,大大提高了MCI患者的清晰度和有用性.
科学领域:
- 老年学和认知科学 认知学和认知科学
- 卫生识字和患者教育
- 心理学和行为医学 心理学和行为医学
背景情况:
- 轻度认知障碍 (MCI) 影响着大量人群,需要量身定制的支持策略.
- 现有的资源往往缺乏整合生活方式修改和心理支持.
- 以患者为中心的方法对于有效管理认知衰退至关重要.
研究的目的:
- 为患有轻度认知障碍 (MCI) 的人开发以患者为中心的手册.
- 整合基于证据的生活方式修改和心理支持策略.
- 通过参与式的开发过程,确保手册是可访问和有用的.
主要方法:
- 一种参与式研究模式,涉及跨学科团队和患有MCI的个人及其家人.
- 通过采访收集定性数据,以收集患者的不同观点和经验.
- 使用患者访谈,健康素养评估和团队讨论来改进内容和可访问性的代评估.
主要成果:
- 开发的手册涵盖了9个领域,包括生活方式,营养,运动,认知训练和心理支持,围绕38个患者问题 (PQ) 进行结构化.
- 卫生素养评估显示,难以使用的PQ显著减少,从前修订的73.7%降至后修订的5.3%.
- 形成性评估发现需要更清晰的解释,后修订反侧重于编辑改进.
结论:
- 在整个开发过程中,患者的参与确保了手册有效地满足MCI患者的特定需求.
- 最终的手册包含了利益相关者的意见,将科学知识与患者经验协调起来,以实现个性化的MCI管理.
- 该手册正在准备出版,为患者和公众提供了宝贵的资源.
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