皮肤淋巴瘤在线患者教育的可访问性和可读性
Celine M Schreidah1, Lauren M Fahmy1, Brigit A Lapolla2
1Columbia University Vagelos College of Physicians and Surgeons, New York, New York.
JAAD international
|September 20, 2023
概括
在线关于皮肤淋巴瘤的信息往往很难让患者访问和理解. 教育材料超过了推的可读性水平,表明需要更清晰,更为患者友好的在线资源.
科学领域:
- 在瘤学瘤学.
- 皮肤病学 皮肤病学
- 医疗信息学 医疗信息学
背景情况:
- 皮肤淋巴瘤患者在网上寻求信息.
- 面向患者的教育内容的可访问性是一个重大挑战.
研究的目的:
- 评估皮肤淋巴瘤在线患者教育的可访问性和可读性.
- 评估皮肤T细胞淋巴瘤 (CTCL) 和皮肤B细胞淋巴瘤 (CBCL) 亚型的资源.
主要方法:
- 搜索了11个皮肤淋巴瘤术语,分析了1083个网页.
- 不包括医生指导的文献;按学术/非学术和皮肤病/非皮肤病主机分层.
- 通过使用5个计算器和Flesch-Kincaid阅读方便来评估可读性.
主要成果:
- 学术网站早些时候出现了;皮肤病学网站很少.
- 更罕见的淋巴瘤具有更少的可访问结果.
- 可读性明显超过了六年级水平的建议 (P < .001),CTCL材料比CBCL复杂得多.
结论:
- 由于复杂性,在线皮肤淋巴瘤教育在很大程度上无法获得.
- 迫切需要更多的患者友好型在线资源.
- 提高可读性和增加皮肤病学托管的内容是必不可少的.
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