在社区瘤实践中收集性取向和性别认同数据的障碍,促进者和建议
Megan A Mullins1,2, Lisa Reber1, Ariel Washington3
1Peter O'Donnell Jr. School of Public Health, UT Southwestern Medical Center, Dallas, Texas, USA.
Cancer medicine
|September 21, 2023
概括
在癌症护理中收集性取向和性别认同 (SOGI) 数据对于公平至关重要. 障碍包括缺乏理解和IT支持,但培训和明确的政策可以改善SOGI数据收集.
科学领域:
- 在瘤学瘤学.
- 健康 公平 卫生 公平
- 实施科学 实施科学
背景情况:
- 性取向和性别认同 (SOGI) 数据收集对于解决癌症不平等至关重要.
- 不到20%的NCI社区瘤研究计划 (NCORP) 实践定期收集SOGI数据.
- 在NCORP实践中评估了SOGI数据收集的多层次障碍和促进者.
研究的目的:
- 评估NCORP实践中SOGI数据收集的多层次障碍和促进者.
- 确定阻碍和促进定期收集SOGI数据的因素.
- 为改善社区瘤学中SOGI数据收集的策略提供信息.
主要方法:
- 在七个有目的地抽样的NCORP瘤实践中进行了14次半结构面试.
- 每个诊所采访了一名临床医生和一名临床工作人员.
- 利用由实施研究综合框架 (CFIR) 提供的专题分析.
主要成果:
- 障碍包括对SOGI数据作用的理解不足,IT基础设施不足,以及低优先级感知.
- 确定了西斯-异性规范文化,缺乏政策,以及团队对SOGI问题感到不舒服.
- 建议的解决方案包括将SOGI问题规范化,确保患者隐私,并澄清临床相关性.
结论:
- 对SOGI数据收集的障碍源于人们的看法,即披露数据不会影响护理质量.
- 瘤团队需要培训文化敏感的SOGI收集和教育其相关性.
- 建议支持实施SOGI数据收集政策.
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