多层次的社区参与,为随机临床试验提供信息
Kirby L Wycoff1, Jabina G Coleman, Christine M Santoro
1Department of Counseling and Behavioral Health, College of Health Professions, Thomas Jefferson University, the Maternal Wellness Village, the Program for Maternal Health Equity, Center for Urban Bioethics, the Department of Urban Health and Population Science, and the Department of Internal Medicine, Lewis Katz School of Medicine at Temple University, and the Division of Neonatology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and the Department of Urban Health and Population Science, Duke University, Durham, North Carolina.
社区的贡献对于改善黑人母亲心脏健康临床试验至关重要. 解决创伤和建立信任是成功实施和健康公平的关键促进因素.
科学领域:
- 孕产妇健康 孕产妇健康
- 健康 公平 卫生 公平
- 实施临床试验的实施
背景情况:
- 黑色分娩个体在心脏健康结果方面面临着显著的差异.
- 优化临床试验设计需要了解利益相关者的观点.
研究的目的:
- 探索促进者和实施随机临床试验 (RCT) 的障碍,重点关注黑人母亲的心脏健康.
- 了解患者,社区围产专业人员和卫生系统临床医生的看法.
主要方法:
- 质量,描述性的设计,以社区为基础,参与式的方法.
- 六个半结构化的焦点小组与各种利益相关者 (患者,临床医生,工作人员,社区专业人员) 进行了讨论.
- 数据收集时间为2021年11月至2022年1月.
主要成果:
- 出现了四个主要主题:社区/医疗系统创伤,缺乏信任,以及渴望被倾听和重视.
- 希望和热情主要来自患者,社区专业人员,居民和支持人员.
- 在不同参与者群体中,观察到不同的感知.
结论:
- 了解利益相关者的看法对于公平的临床试验实施至关重要.
- 解决创伤和建立信任对于参与研究的黑人分娩个体至关重要.
- 这些发现对缺乏资源的系统中的健康公平有影响.
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