在青少年囊性纤维化患者群体中进行家庭螺旋计的教育和实施
Sarah Schaffer1, Abigail Strang1, Ambika Shenoy1
1Nemours Children's Health Delaware, 1600 Rockland Rd., Wilmington, DE 19803, United States.
Respiratory medicine and research
|September 21, 2023
概括
家庭螺旋测量可以为患有囊性纤维化 (CF) 的青少年提供可靠的肺功能数据,如果得到结构化教育和参与的支持. 这种方法显示了CF护理中远程监测的潜力.
科学领域:
- 肺部医学 肺部医学
- 医疗技术 医疗技术 医学技术
- 患者监测 患者监测
背景情况:
- 对囊性纤维化 (CF) 患者来说,肺功能监测至关重要.
- 由于COVID-19大流行,需要转向通过远程医疗对患者进行远程监测.
- 家庭螺旋测量作为CF青少年的远程评估工具被探索.
研究的目的:
- 描述家居螺旋计教育的实施情况,针对患有CF的青少年.
- 在这个人群中评估家庭螺旋测量数据的可靠性,一致性和准确性.
- 评估家庭螺旋测量用于远程CF患者监测的可行性.
主要方法:
- 在一个单一的CF中心进行了为期9个月的质量改进研究.
- 在40名患有CF的青少年中分配家庭螺旋仪.
- 由CF呼吸治疗师进行结构化培训,并每周/每月报告结果.
- 对螺旋计数据的回顾性审查,以确保其准确性和一致性.
主要成果:
- 88%的参与者完成了初级培训.
- 60%的人在平均每周5次尝试后建立了可靠的家庭螺旋计技术.
- 83%的验证结果是准确和一致的,与临床螺旋计相比.
结论:
- 在适当的教育和参与下,家庭螺旋计可以为CF护理团队提供有价值的数据.
- 实施需要大量的资源和青少年的积极参与.
- 需要进一步研究临床影响,长期可靠性和持续参与.
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