对慢性病患者及其家属的预先护理计划:一种干预开发研究
Christina Egmose Frandsen1,2,3, Hans Dieperink1,2, Bettina Trettin4
1Department of Nephrology, Odense University Hospital, Odense, Denmark.
Journal of clinical nursing
|September 25, 2023
概括
这项研究为慢性病患者和家属开发了预先护理规划干预措施,解决医疗保健专业障碍. 由此产生的对话过程和工具旨在改善沟通并支持整个疾病轨迹的共享决策.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學.
- 抚慰性护理是一种缓解性护理.
- 健康干预 发展 卫生干预
背景情况:
- 慢性病 (CKD) 患者和家人希望早期和持续的预先护理计划 (ACP).
- 医疗保健专业人员面临着启动ACP的障碍,需要采用结构化的方法.
- 利益相关者的参与对于确定优先事项和制定有效的卫生干预措施至关重要.
研究的目的:
- 制定预先护理规划 (ACP) 干预措施,以满足慢性病患者,他们的家人和医疗保健专业人员的需求.
- 为了解决医疗保健专业人员在启动ACP时所面临的障碍,并满足患者和家庭对早期和持续规划的要求.
主要方法:
- 采用一种以医学研究委员会的框架为灵感的代码设计方法.
- 与消费者 (患者和家庭) 进行了代研讨会,并使用行动研究螺旋分析了数据.
- 利用"在医疗保健领域报告干预开发研究指南" (GUIDED) 进行 robust 报告.
主要成果:
- 确定了五个关键的亚洲和南美洲干预领域:生物心理社会方法,早期息护理,家庭重点,早期/持续的亚洲和南美洲,以及以消费者为中心.
- 为医疗保健专业人员设计了一个对话过程,以促进有关治疗和生活的价值观,偏好和愿望的讨论.
- 开发了一个ACP工具,以指导医疗保健专业人员进行这些对话.
结论:
- 代码设计使得消费者产生了重大影响,从而为CKD患者和家属提供了实际的ACP干预措施.
- 该干预包括对话过程和ACP工具,旨在加强沟通并支持共享决策.
- 这种干预提供了有价值的知识,可以改善整个疾病轨迹的护理和治疗,并与患者和家庭的价值观保持一致.
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