慢性耐药焦点发作的负担:它可以预防吗?
Elinor Ben-Menachem1, Bettina Schmitz2, Reetta Kälviäinen3
1University of Gothenburg, Gothenburg, Sweden.
许多患者在治疗中扎,面临着生活质量 (QoL) 差等风险. 本综述考察了影响患者 (PWE) 寿命的因素,以指导更好的护理策略.
科学领域:
- 神经学 神经学
- 生活质量研究 研究 生命质量研究
- 公共卫生 公共卫生
背景情况:
- 影响着相当一部分人口,尽管有治疗方法,但大量的人患有控制不良的发作.
- 耐治疗性带来风险,包括疾病进展,死亡率和发病率增加,心理健康问题以及生活质量 (QoL) 降低.
研究的目的:
- 在患者 (PWE) 中全面审查导致与健康相关的 QoL 损害的因素.
- 确定潜在的干预点和策略,以实现更全面的管理方法.
- 为医疗保健提供者和决策者提供有关改善PWE质量质量的信息.
主要方法:
- 系统性文献综述检查症中的QoL的研究.
- 分析影响与健康有关的QoL的与发作相关的和非发作相关的因素.
- 综合发现,提出整体护理策略.
主要成果:
- 确定了许多与发作相关的因素 (例如,发作频率,类型) 对PWE的QOL产生负面影响.
- 突出显著的非发作相关的贡献者降低了QOL,包括药物副作用,心理社会挑战和并发症.
- 演示了的严重程度和更广泛的生活领域之间影响整体幸福感的复杂相互作用.
结论:
- 整体方法对于改善PWE中与健康相关的QoL至关重要,不仅仅是控制.
- 干预措施应应对直接的影响和间接的后果,如精神困扰和社会因素.
- 需要基于证据的策略来提高QoL,并为全面的治疗政策提供信息.
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