干预措施可以提高对痴呆症患者生命末期的控制:跨文化CONT-END可接受性研究协议和试点测试
Hanneke J A Smaling1,2, Xu Jingyuan1, Miharu Nakanishi1,3
1Department of Public Health and Primary Care, Leiden University Medical Center, Hippocratespad 21, Gebouw 3, Postal zone V0-P, P.O. Box 9600, Leiden, 2300 RC, The Netherlands.
BMC palliative care
|September 26, 2023
概括
这项研究探讨了跨文化的痴呆症患者生命终端控制干预措施. 研究结果将有助于将护理与偏好协调一致,并了解控制控制.
科学领域:
- 老年学是一门学科.
- 抚慰性护理是一种缓解性护理.
- 生物伦理学生物伦理学
背景情况:
- 晚期痴呆症的认知和身体功能丧失限制了患者对终身护理的控制.
- 对于生命终端干预措施的可接受性存在有限的理解,这些干预措施可以增强痴呆症患者的控制.
- 提前护理规划 (ACP),技术和安乐死是可能增加终身控制的干预措施.
研究的目的:
- 检查四种痴呆症生命终端干预措施的跨文化可接受性,这些干预措施提供了控制要素.
- 确定与痴呆症患者,护理人员和医生之间接受这些干预措施相关的因素.
- 报告动画视频片段的开发和试点测试,以标准化解释干预措施.
主要方法:
- 在六个国家进行了一项横截面的混合方法图片研究.
- 参与者 (痴呆症患者,家庭护理人员,医生) 观看动画视频,解释干预措施 (2 ACP方法,技术,安乐死).
- 通过采访来评估可接受性,并通过分析检查群体/国家差异和相关因素 (生活观,个性,人口统计学).
主要成果:
- 试点测试表明,动画视频和仪器对痴呆症患者,照顾者和老年人来说是可以理解的,可以接受的,可行的,并且不负担.
- 该CONT-END研究旨在从关键利益相关方的角度提供跨文化洞察力,从关键利益相关方的角度了解干预措施的可接受性.
- 这项研究将探讨如何以及何时在痴呆症中终生控制被认为是有益的或潜在的有害的.
结论:
- 开发的动画视频和仪器适用于对痴呆症生命终端干预的跨文化研究.
- 预计CONT-END研究将为痴呆症终身护理干预措施的可接受性提供关键数据.
- 研究结果将有助于更好地调整干预措施与患者和利益相关者的偏好,提高对痴呆症护理控制的理解.
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