家长的经验,他们的学龄儿童被治疗治疗性低温作为新生儿:一个焦点小组研究的经验
Sari Kokkonen Nassef1, Mats Blennow Bohlin1,2, Maria Jirwe3,4
1Department of Clinical Science, Intervention and Technology, Division of Paediatrics, Karolinska Institutet, Stockholm, Sweden.
Nursing open
|September 27, 2023
概括
父母经历了长期的心理影响从治疗性低温 (TH) 他们的新生儿后周围窒息. 改善沟通和支持对于接受TH治疗的家庭至关重要.
科学领域:
- 新生儿护理 新生儿护理
- 发育儿科 发育儿科
- 医疗治疗对心理的影响
背景情况:
- 治疗性低温 (TH) 是对患有围产期窒息的新生儿的标准治疗,以改善神经发育结果.
- 了解TH的长期家长经验对于全面的护理至关重要.
研究的目的:
- 描述家长长期经历 (治疗后10-13年) 治疗性低温对于他们的新生儿经过周围窒息后的婴儿.
- 识别家长面临的持久心理和日常生活挑战.
主要方法:
- 使用与家长的重点小组 (FGs) 进行定性描述性研究.
- 在2007年至2009年期间接受TH治疗的婴儿的15名父母参加了5个FG.
- 根据SRQR指导方针,使用框架方法分析了完整的FG转录.
主要成果:
- 父母报告说,在日常生活中,他们面临着重大的心理困难和扎,在TH治疗后,这种困难持续了多年.
- 关键主题包括对治疗的关注和感激,信息不足以及未经处理的经验的持续影响.
- 挑战在学校和日常生活中持续存在,突出需要持续支持.
结论:
- 治疗性低温严重影响父母的心理,其影响持续多年,超过最初的治疗.
- 医疗保健专业人员和学校的不有效沟通导致了家长的痛苦.
- 在出院前主动识别婴儿和家庭需求至关重要,以防止长期担忧.
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